J’ai beaucoup apprécié la première séance organisée le 30 septembre, autours du thème « Les troubles cognitifs et le retentissement scolaire et professionnel », qui je trouve a été très riche pour une première session du groupe de parole sur la zone des Hauts de France organisée par Mme Tisset, déléguée de l’association Génération 22 du secteur.
Les autres sessions ont été décalées et les sujets modifiés au regard des attentes des participants. Les voici mises à jour.
Le groupe de parole se déroulera :
- le samedi 2 décembre 2017 de 9h30 à 11h30, au 43 rue Jacquemars Giélée à Lille
«Les risques de pathologies psychiques et psychiatriques – la remédiation cognitive et réhabilitation psycho-sociale » - le samedi 27 janvier 2018 de 9h30 à 11h30, à Pizza Jazz au 56 Rue des Stations à Lille
«Se vivre parent au delà des difficultés du quotidien et des inquiétudes» - le samedi 24 mars 2018 de 9h30 à 11h30 à Pizza Jazz
«Équilibre familial et vécu des troubles dans la fratrie»
Ce groupe sera d’ailleurs présenté le 25 novembre 2017, lors de la matinée organisée avec le centre de référence des maladies rares labellisé pour les anomalies du développement au CHRU de Lille.
Pour rappel, le Groupe de Parole est animé par Madame Christine Tisset, déléguée G22 de la région des Hauts de France, et moi-même. Les séances sont prises en charge par l’association et de fait gratuites pour les adhérents de Génération 22.
Si vous avez un enfant atteint par la microdélétion 22q11.2, et que vous souhaitez rencontrer d’autres parents, échanger avec eux, partager votre vécu ou vos questionnements : inscrivez-vous auprès de Christine Tisset au 07 81 16 95 04 ou à hautsdefrance@generation22.fr.
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